r/NDIS • • Mar 09 '17

Moderator Post Welcome to r/NDIS! Here is some friendly advice before you get started!

23 Upvotes

r/NDIS aims to be inclusive, understanding and diverse. We all come from all walks of life. You may have a disability or multiple disabilities, you may be a carer to one or many, or an advocate, a service provider, a friend or even just an interested member of the wider community.

 

Here are some things to keep in mind while you are here:

  • Make sure to follow the current rules of this subreddit. The rules may be found in the sidebar on New Reddit or here.

  • Remember the human being on the other side. Be respectful to one another, empathetic, and be kind and gentle. Keep the discussion friendly and constructive. It will often help to link to sources such as official NDIS links to illustrate your point.

  • If you see someone talking about self harm or suicide and are wondering what to do, you may want to read this post from r/SuicideWatch and this post from r/depression. If you are finding it hard to cope or are suicidal, please find professional help or call a crisis hotline.

  • No doxxing. Do not post any sensitive and/or personal information about others including those in your care. This may include names, ages, addresses and diagnoses. Remember to remove sensitive personal information about others before posting.

  • Keep acronyms to the minimum to avoid confusion, and explain what they mean when you do use them. Many people are new to the NDIS, find acronyms inaccessible, or are not working in the industry so will not understand this kind of jargon.

  • No advertising. You will be banned regardless of whether you are a participant.

  • Surveys are not allowed on this subreddit unless an exception has been made by mods. More information about the reasoning behind this can be found here.

  • Please make sure not to post previously posted links. Repeat posts may be deleted.

  • Correctly flair your posts!

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  • Offering or accepting requests for DMs (direct messages) is not encouraged. Please consider the safety of yourself and others when interacting online.

  • Disclaimer: We, as Redditors, aren't able to assess your NDIS eligibility, interpret legislation, be able to decide whether you are rule compliant, etc. An individual Redditor's advice is their opinion only. r/NDIS can't be held responsible if the wrong information is displayed on the subreddit. When in doubt, contact NDIA directly.

  • We can't diagnose you so if you have doubts about your health, please see a doctor instead of asking us here.

 

When posting, choose from the following flairs:

Flair Type Description
Seeking Support - Participant/Nominee/PWD Use this flair if you are a participant, nominee or are receiving or looking to receive services or support, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - I provide services Use this flair if you are someone who provides services or support such as a support worker, service provider, NDIA employee, advocate and so on, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - Other Use this flair if you neither receive nor provide services, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Sharing Resources Use this flair when sharing information, linking to resources or posting in depth advice.
Vent - no advice, please Use this flair when making a vent post but are not seeking advice. Commenters should not provide advice. Vent posts requiring advice should use the relevant Seeking Support flair instead.
Vent - advice welcome New flair - Use this flair when making a vent post and when you are not seeking support but when you are still open to advice in the comments.
News Use this flair when linking to news articles, announcements, and press releases relating to NDIS.
Activism/Advocacy Use this flair when posting about activism and advocacy that relate to NDIS, disability or other exempt topics as defined by the subreddit rules, such as posts about rights, social change, direct action and public policy.
Other Use this flair for posts that do not fit in any particular category, or if your post does not require extra moderation support.

 

There are also two flairs for moderator use only:

Flair Type Description
Megathread This flair is reserved for moderator use only and is for megathreads.
Moderator post This flair is reserved for moderator use only and is for posts about subreddit rules and announcements.

 

Want to contribute and help others? Click on one of the 'Seeking Support' flairs in the sidebar, take a look at some of the questions posed by the community, and take part in the discussion.

If you come across any problems or notice someone breaking the rules, please report it to the mods. The cohesion and happiness of this community relies on everyone's help and cooperation =D

 

Please note, this post will be updated as needed.

Thanks for reading, from Mod u/sangasd!


r/NDIS • • May 15 '26

Moderator Post Announcement: New rule on the use of AI in r/NDIS

85 Upvotes

r/NDIS has voted. The subreddit now has a new rule on the use of AI.

The use of AI is only allowed as a communication tool for accessibility reasons and must be accompanied by a disclosure of its use. Outside of accessibility reasons, the use of AI is not allowed. AI cannot be used to generate answers or as sources of information, to produce ‘AI slop’, or to spam.

Thank you to everyone who took part in last month’s poll.


r/NDIS • • 7h ago

Seeking Support - Participant/Nominee/PWD Funds get Cuts.....

9 Upvotes

all of sudden got text from NDIS calling me and its plan manager, my funds for core got cut in half to about 8k as ADL not really ultilized...transportation is self manage which sent to the bank and how easy to have plan manager because i always goes over.

my plan rollover and they do review and approve new plan hour ago...it kicked in already.


r/NDIS • • 9h ago

Seeking Support - Participant/Nominee/PWD Yard maintenance and cleaning

4 Upvotes

I just saw a post on Facebook saying that yard maintenance and cleaning are also being cut from new plans as they are no longer considered disability related or something. Is this actually true ? I thought it was just social and community participation being cut.


r/NDIS • • 10h ago

Other Reminder: NDIS new framework planning consultation closes 14 October

5 Upvotes

A heads-up for NDIS participants, families, carers and providers: the Australian Government’s consultation on new framework planning and NDIS supports closes Wednesday 14 October 2026 at 11:59 pm AEDT.

The consultation asks for feedback on proposed rules covering support needs assessments, how budgets are worked out, how plans can be used and changed, and updates to the NDIS Supports Transitional Rule. You can respond online, upload a written submission, send a video response or request a phone call.

Read the consultation papers and have your say

These are proposed rules. New framework planning is expected to begin from 1 April 2027 and roll out gradually; participants will keep using their current plan until they move to the new system. The government says draft versions of all eight planning rules will be available for further consultation later this year. More on the timeline.

If you’ve read the papers, what parts do you think need clearer explanation?


r/NDIS • • 20h ago

Seeking Support - Participant/Nominee/PWD still not on PACE

4 Upvotes

Hey, i’m on the old system and have been on NDIS for the past 5 years but haven’t been moved over yet to the new system. Apparently it’s happening to everyone and everyone is loosing funding but I got a letter the other week saying my plan is rolling over again so won’t even be reviewed… is this normal? Should i be prepared to fight for my funding? I don’t have a very big plan…


r/NDIS • • 1d ago

News A Dutch study found that applying for support can require exactly the capacities disability or illness has weakened — does this sound familiar from the NDIS?

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56 Upvotes

A recent Dutch doctoral study looked at the administrative burden people face when applying for public support.

A few findings felt very relevant beyond the Netherlands:

  • Applicants may need to understand procedures, gather information and make decisions at exactly the time when illness, disability or another difficult life situation has reduced their capacity to do so.
  • Previous experience with the system appeared to matter more than education level.
  • First-time applicants were especially likely to struggle with the process.

What I found interesting is that the study shifts some of the focus away from whether individuals have the “right skills” and toward whether support systems themselves are designed in a way people can realistically navigate.

Reading some of the experiences people share about the NDIS, I wondered whether this feels familiar here too. Does applying for or managing NDIS support sometimes require exactly the executive functioning, persistence or administrative capacity that a person’s disability makes harder?

Article:
https://humanumi.com/applying-for-public-benefits-administrative-burden/


r/NDIS • • 1d ago

Seeking Support - Participant/Nominee/PWD Was recently accepted, called today by NDIA to request consent to add impairment category

2 Upvotes

I was accepted as a participant late last week. Was given outcome over phone, and an initial acceptance letter also sent digitally, to my email following (at my request).

Received a call today by same worker who was seeking my consent to reaccess my file to add categorisation of impairment (initially she said impairment levels), then later impairment category - she confirmed which category she would be adding - and said something had gone wrong on her end following my application processing and acceptance, which meant the information she was seeking my consent to add, was no longer showing in my file.

I confirmed and clarified with her that the phonecall was not a call to put in place my planning meeting, and nor was it an impromptu planning meeting phonecall.

I asked her to give me more information and help me understand what this meant, and whether this was part of the usual process.

I ended up not giving my consent to do so at the time - as I wanted to seek some more info from a either disability advocate group or other support/s prior (still planning to do) - as I didn't want to agree to something which might have consequences for my plan, that I'm not yet aware of, or didn't feel confident in yet.

We agreed that she would call me back in a few days time about the matter, once I'd saught some advice.

Is this normal protocal? Anything I need to be wary of?

Application accepted for Autism/ASD 2, and she noted the category of inpairment she would be filing for my application was 'Neurological' (no other impairment categories to be listed or noted, as far as she made aware).

Thanks.


r/NDIS • • 1d ago

Vent - advice welcome NDIS FRAME WORK PAYMENT

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3 Upvotes

Hi, has anyone done the $200 NDIS 2 hour call?
Has anyone being paid the $200?
They say it takes 4 weeks to process the payment and it’s being 5 weeks and they’re just saying the same script over and over.


r/NDIS • • 2d ago

News I mean, we knew it, but it is still distasteful

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8 Upvotes

r/NDIS • • 1d ago

Seeking Support - Other ASD assessment and Early Intervention Plan

0 Upvotes

Hi, we are wanting to get an ASD assessment for our 5yr old. They have been on an early intervention plan since before they were 1 for other concerns. Our paediatrician said that we could put the Assessment into our plan, but has since left the practise we are at so I can’t follow up on it.
Has anyone done this?

Thanks ! 🙏


r/NDIS • • 3d ago

Other Changes to support worker guidelines. No longer allowed to leave client "unattended" Is this real?

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31 Upvotes

A support worker of my partner received this e-mail earlier in the week. They were then expected to inform all of their clients at the start their next shift with them. We were told this today by the support worker with zero communication from the company. I can't find any other information about this, official or not, and as it's the weekend nobody is available to call. Has anyone else seen or heard anything about this?


r/NDIS • • 2d ago

Other New SIL definition

1 Upvotes

I'm wondering if anyone else has come across this scenario. Participant with plan managed funds is funded for SIL. They manage their own employed staff, roster and day to day care. According to the latest definition of SIL it is not SIL so they and the support workers don't need to be registered. They have what is known as a self-directed service.

Now they have been told by NDIS if they are not receiving a SIL service they can't claim SIL funds (the ones with 0138). 80% of their Core budget is under the new 0138 codes.

Options are to get a registered provider to employ his team or get a plan variation to move the funds out of "SIL". Both of which will take time and have their own risks.

I thought the clarification of what is and what is not "SIL" was meant to allow people who run their own service to carry on doing it.

For a bit more context, I provide an admin service that invoices the PM for the total payroll, super, workers comp etc based on his staff timesheets and then makes those payments on his behalf. We had no issue doing it before with the 0115 codes for Assistance With Daily Life.


r/NDIS • • 3d ago

Seeking Support - Participant/Nominee/PWD Does updating my Participant Statement/goals under s 47 trigger the new post-1 October funding reduction rules?

2 Upvotes

I’m hoping the NDIS brain trust can sanity-check my reading of the new rules.
I have an existing old-framework NDIS plan that started before 1 October 2026. I’m not looking to have my funded supports changed or request a plan reassessment. I only want to update my Participant Statement of Goals and Aspirations under s 47 of the NDIS Act.
My concern is the wording of s 47: when a participant provides a changed statement, their existing plan is “taken to have been varied” to include the changed version.
With the new s 34A funding-reduction arrangements applying from 1 October, does that deemed variation have any effect on whether the new reduction rules apply to my plan?
My reading so far is that a s 47 goals update varies the existing plan but does not cause a new plan to commence or amount to a s 48 reassessment. Section 34A appears to be concerned with relevant old-framework plans that commence on or after the determination takes effect, and NDIA guidance talks about plans being created or reassessed from 1 October.
But before I touch my existing plan, I’d really like to confirm that I’m not missing another provision, rule or determination that treats a variation as a trigger.
Has anyone looked closely at the legislation/instrument on this, or had a goals-only s 47 update processed since 1 October? Particularly interested in answers with references to the relevant sections/instruments.


r/NDIS • • 3d ago

Other Best use of funds for finding and keeping a job

4 Upvotes

My 18 year old son with level 2 ASD and a learning disability had a casual job at a fast food chain, however they have stopped giving him any shifts for several weeks now. He is on the DSP, but would like to find another part time or casual job. He has an appointment with a IES provider in a few weeks, but I don’t have much faith that they will be helpful. Therefore I am wondering what he can use the approx $2500 NDIS funding for under the category for finding and keeping a job. Has anyone else successfully used it, and what did you do?


r/NDIS • • 3d ago

Vent - advice welcome Notice of Impairments changes

22 Upvotes

4 weeks ago I got a lovely call from the NDIS saying they have ammended my Notice of Impairments in the way I had requested - two Impairments added that should have been there from the beginning. Great. Then we had this long conversation where she said that I would be getting extra funding and that a planner would call me and discuss where I wanted to spend the extra funds. I said wow that is great because it's so different than my first plan and my IR and she assured me that that is the way it's meant to work.

Unfortunately I did not get that in writing. 4 weeks later and I email my LAC to ask when the planner will call.

The LAC then said no they don't do that, there is no further funding, and she spoke to the woman who spoke to me and there is no way she said that.

I'm so sick of being gaslit by these people. I've put in yet another complaint about procedural fairness, which you can be sure will bit go anywhere.


r/NDIS • • 4d ago

Vent - advice welcome I'm becoming quiet anxious!

27 Upvotes

I'm paraplegic and can manage personal care myself. I live with my 26 year old daughter, who works full time and doesn't drive.

The bulk of my funding is for community access, because I don't yet drive, a cleaner, gardener, continence consumables and wheelchair services. With the changes I'm sure my plan will be reduced greatly and therefore my ability to leave home regularly. Also taking away the ability to appeal the decision is making me very afraid as I'm sure I'll become more isolated than I already am. 😢


r/NDIS • • 3d ago

Seeking Support - Participant/Nominee/PWD Would like a review but concerned

5 Upvotes

I'm a paraplegic with a lot of other disabilities and I not long had my plan redone due to changes in my circumstances. I had been waiting for nearly 12 months for this to happen. It was my first time going through this process as my plan had just been rolled over since I started on the NDIS in 2019.

I lost my psychosocial part of my plan but the Escalations Planner was nice enough to talk me through everything I need to get it added back onto my plan. It is something that I definitely need and use but I'm really concerned with all these changes that I will lose some of the funding that I was awarded which I also need.

So I was wondering if anyone has any idea if doing a review of certain areas of a plan can effect the remaining part? I hope this makes sense.


r/NDIS • • 4d ago

Other NDIS portal - 2 days of IT error messages and "try again later", after you log in

3 Upvotes

Anyone else experiencing this? Anyone know when the NDIS portal, which I am accessing via the myGov portal, will be fixed?


r/NDIS • • 4d ago

Seeking Support - Participant/Nominee/PWD Are there any regulations around SIL home staff and infectious illnesses?

13 Upvotes

I'm a participant and I live in NDIS funded SIL home. I've been in this particular companies care since May 2024. It's been an absolute nightmare from the beginning, so much has gone wrong, astonishing levels of incompetence across the board. This time, for the past 3 days, one of the SIL workers has been coming in with some kind of respiratory infection, flu or something. I'm now sick, I woke up this moring with a sore throat and now tonight I'm clogged up, coughing and sneezing. I have autonomic neuropathy, my health has been in decline for a number of years and I do not know how much of an insult my body can physically take. This may actually break me. Is there any official policy around stuff like this? I don't feel safe approaching this companies management. I don't know what to do.


r/NDIS • • 4d ago

Vent - advice welcome Ndis details

0 Upvotes

Scenario (self managed): a family manages the NDIS by themselves. The OT specialist provides services, then they give the invoices, the family pays.

Then the family uploads invoices and other details. Then the NDIS pays.

Above is the scenario, now, is the OT's right to ask for the ndis details and end dates? OT prefers NDIS clients (you know) and I am always against it, why should they care whether the family got NDIS or not. They do mention the ndis codes on the invoice. Is it mandatory for them to know whether the client has got NDIS or not? The OT is not shady but I hate the idea they prefer clients with NDIS.


r/NDIS • • 5d ago

News What is and isn't changing today as NDIS alternative Thriving Kids begins

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16 Upvotes

r/NDIS • • 5d ago

Seeking Support - Participant/Nominee/PWD HELP! The claim amount you have entered is more than we would usually expect for Assistance with Social, Economic and Community Participation.

5 Upvotes

Hi all,

I am trying to make a claim on the NDIS and have received this message -

'The claim amount you have entered is more than we would usually expect for Assistance with Social, Economic and Community Participation. Please check this is correct.'

The invoice is from Mable and has two weeks worth of support hours due to my support worker not submitting her hours in time.

If I proceed will I get flagged by the NDIS?

I would rather fly under the radar at the moment given what is currently going on with all the changes and reviews and what not.

Any advice would be greatly appreciated

Cheers :)


r/NDIS • • 6d ago

Vent - advice welcome I'm so mad at this company.

82 Upvotes

So I don’t know if this is allowed here, but I’ve recently come across a company that is just making me so mad. I’ve been a support worker for over a decade - my background is social work, which I started back in 2002 after I graduated college.

With You Support Services is run by a gentleman by the name of Phil Courtis. From what I’ve seen, Phil appears to have been involved in campaigning for One Nation. He has posted online expressing strong criticism of socialism, including views about what he believes it could do to Australia. He is also involved in providing services through the NDIS.

Worse than this - from what I’ve been able to find, he has a Cert 4 from an online provider, and I haven’t been able to establish what prior experience he had. It also appears that his services may be being charged at the full price guide rates.

I’m angry because on one hand he’s involved in providing services funded through the NDIS, and then on the other hand he appears to hold political views strongly critical of socialism.

I don’t know what to do. I don’t know if anything can be done. I’m just frustrated by what appears to me to be a contradiction, and I’d like to understand it better.

Apologies if this isn’t allowed. I needed to vent more than anything.


r/NDIS • • 5d ago

Seeking Support - Participant/Nominee/PWD First plan for ASD set, need OTA FTA assessment but my reports listing comorbid ME/CFS

1 Upvotes

I got approved for ASD level 2. Instead of getting a planning meeting scheduled like the NDIS letter states, I got an sms at 5.50pm that someone would call within the hour and she called in less than a minute. I had to literally ask her if this was the planning meeting because I was so confused. Then I said that I thought I could have it on phone or in person, as their website states, but I can’t because she’s in WA and I’m in QLD. Also I wanted a support person with me as I struggled to communicate clearly and since my husband was home, she railroaded me into completing it there and then. It really felt like I had no other option, which was very stressful as my 5yo kid was present and we were going to be heading into bedtime routine very soon.

For 12mo, I got zero core support, $6.5 in increased social and community participation, $1.2 in choice and control for a plan manager, $8 for improved daily living skills which includes a bit extra at first for the OT functional capacity assessment.

I understand that they want the FCA first to know how much I’m affected, but the problem is both my psychologist and psychiatrist reports discuss my mental health and comorbid conditions like ME/CFS, because in their eyes, my ASD both causes and is worsened by those things. But of course, those are an excuse for NDIS to not fund stuff. No amount of explaining that my immense fatigue comes from autistic burnout and sensory/social/executive function overload mattered. Heck, I’ve been doubting I have ME/CFS and I think I just live in autistic burnout in adulthood.

I’m concerned that even with the FCA, they will still say that many of my impairments are due to ME/CFS. The planner was really stuck on the fatigue and why ASD would need support for things like cleaning or driving. I had really hoped for some help with household stuff or a support worker to help lessen the burden on my husband, who does cares for all 3 of us, does the vast majority of household duties, and has his own health issues so he’s at very high risk of carer burnout.

What’s my best play - to get the FCA and not mention ME/CFS to them, so I can better explain that my fatigue is due to sensory, social and executive function overwhelm, or to focus on getting ME/CFS as a formalised diagnosis to add on to my application?

I honestly don’t even know how to get a formal ME/CFS diagnosis that the government would be happy with as there are no specialists that truly apply. Years ago, I tried to apply for DSP for ME/CFS (before realising I was autistic) and it failed miserably.